Connect with these sites for additional ways to know more and take action.
The Pheo Para Alliance’s mission is to empower and support pheochromocytoma and paraganglioma patients globally through knowledge, education, advocacy, and camaraderie while sponsoring key initiatives in data collection, treatment, collaboration, and patient wellness. They recently merged with the Pheo Para Troopers.
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.
The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
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